The Raremark Foundation

Sickle Cell isn’t a curse. It’s a chronic disease that isn’t getting the coverage it needs. At Raremark Foundation, we get that, and we’re here with one goal: to help you discover more about Sickle Cell disease and build a community of advocates.

We sift through the noise, delivering expert-vetted sickle cell info through a real-life lens. We’re here to support and inspire, so you can take action every day to live your best life. Whether we’re talking pain episodes, breakfast, breathing, or mental health, you can trust that all Raremark Foundation (CHF) content is evidence-based, science-backed, and crafted from real life experiences.

You can also trust us to talk honestly about mental health, sickle cell health, relationships, race, and gender, with empathy and inclusivity at the forefront of everything we do.

Learn more

Our Key Programs

Key Achievements

11

Warriors

received life-changing hip replacement surgeries through the Hope for Warriors Fund.

1,140

people

screened for their genotype.

170

Carriers

identified and counseled.

500+

people

empowered to make informed health & family planning decisions.

Community Breakdown

Warriors

112 members

Caregivers

47 members

Volunteers

40 members

Trending topics

Sick Conversations Podcast: Real stories. Honest conversations. Unfiltered experiences.

Join us as we explore the journeys of those living with rare diseases, the challenges they face, and the breakthroughs that bring hope.

Because every story matters. 💙 #SickConversations #RaremarkFoundation

Our Partners