About us

At Raremark Foundation “we get that, and we’re here with one goal: to help.”

Sickle Cell isn’t a curse. It’s a chronic disease that isn’t getting the coverage it needs. At Raremark Foundation, we get that, and we’re here with one goal: to help you discover more about Sickle Cell disease and build a community of advocates.

We sift through the noise, delivering expert-vetted sickle cell info through a real-life lens. We’re here to support and inspire, so you can take action every day to live your best life. Whether we’re talking pain episodes, breakfast, breathing, or mental health, you can trust that all Raremark Foundation (CHF) content is evidence-based, science-backed, and crafted from real life experiences.

You can also trust us to talk honestly about mental health, sickle cell health, relationships, race, and gender, with empathy and inclusivity at the forefront of everything we do.

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About us

Background

Just like any other foundation, there always is a story behind it. Raremark Foundation has evolved from its inception program, S For Sickle Cell to what it is today.

Mission

To build a community of sickle cell warriors, and advocate for people affected and living with Sickle Cell Disease.

Vision

Our vision is to become the most valued and trusted sickle cell community in Uganda.

Background

Just like any other foundation, there always is a story behind it. Raremark Foundation has evolved from its inception program, S For Sickle Cell to what it is today.

Our
team

  • Don Magezi

    President

  • Benjamin Madewo

    Vice President

  • Steven Byamugisha

    Operations Manager

  • John Tarzia

    Communications Manager

  • Allan Busby

    Communications Coordinator

  • Natasha Umuhoza

    Grant Manager

  • Ivan kakulu

    Finance Manager

Board of Directors

  • Dr. Geoffrey Madewo

    Vice Chairman

    Surgeon/consultant

  • Ada Mugenyi

    Secretary

    Business owner

  • Don Magezi

    Board member

    Co-Founder

  • Benjamin Madewo

    Chairman

    Industrial engineer/Technician

  • Zianah Muddu

    Board member

    Partner at FITSPA

  • Steven Byamugisha

    Board member

    Yamzit ltd - C.E.O