About us
At Raremark Foundation “we get that, and we’re here with one goal: to help.”
Sickle Cell isn’t a curse. It’s a chronic disease that isn’t getting the coverage it needs. At Raremark Foundation, we get that, and we’re here with one goal: to help you discover more about Sickle Cell disease and build a community of advocates.
We sift through the noise, delivering expert-vetted sickle cell info through a real-life lens. We’re here to support and inspire, so you can take action every day to live your best life. Whether we’re talking pain episodes, breakfast, breathing, or mental health, you can trust that all Raremark Foundation (CHF) content is evidence-based, science-backed, and crafted from real life experiences.
You can also trust us to talk honestly about mental health, sickle cell health, relationships, race, and gender, with empathy and inclusivity at the forefront of everything we do.

About us
Background
Just like any other foundation, there always is a story behind it. Raremark Foundation has evolved from its inception program, S For Sickle Cell to what it is today.
Mission
To build a community of sickle cell warriors, and advocate for people affected and living with Sickle Cell Disease.
Vision
Our vision is to become the most valued and trusted sickle cell community in Uganda.
Background
Just like any other foundation, there always is a story behind it. Raremark Foundation has evolved from its inception program, S For Sickle Cell to what it is today.
Our
team
Don Magezi
President
Benjamin Madewo
Vice President
Steven Byamugisha
Operations Manager
John Tarzia
Communications Manager
Allan Busby
Communications Coordinator
Natasha Umuhoza
Grant Manager
Ivan kakulu
Finance Manager
Board of Directors
Dr. Geoffrey Madewo
Vice Chairman
Surgeon/consultant
Ada Mugenyi
Secretary
Business owner
Don Magezi
Board member
Co-Founder
Benjamin Madewo
Chairman
Industrial engineer/Technician
Zianah Muddu
Board member
Partner at FITSPA
Steven Byamugisha
Board member
Yamzit ltd - C.E.O